Yet Another Update

Thought it was time I updated this thing. Finally I have the news that I am getting home from hospital (after 13 VERY long weeks)it was getting to the point where I really was as well as I am going to be and therefore I was feeling frustrated because I really wanted to be home.I have coped ok being stuck in there the last 13 weeks but to be honest I think last weekend was really the straw that broke the camel's back I had been out home on the Friday night and after waking up to such a warm Saturday I really was aware that I was going to be stuck inside while everyone else basked in like 23 degress of pure sunshine. To say I wasn't happy on Saturday driving down the motorway is the understatement of the century.

Things are stable I am going home on IVS and have to go into hospital for 3 days every two weeks just for a change in antibiotics and some physio, but I can live with that. With my bloods being at 29 (the lowest they have being in like FOREVER) I am feeling great and cannot wait to be released properly.
This weekend they are letting me stay home both Friday and Sunday night so I can't really complain. So tonight I just enjoyed a chinese with Bethany and Serena and it really is lovely just to be at home doing normal things with my wee sisters (well sitting on the sofa)
Things have been held up with the building of Hidden Treasure but we are hoping to start building soon. Fundraising is continuing to go well and I think we have hit in and around the £90,000 mark which is just fantastic. Also a big Thank you to the three boys who are in their final stages of training for their end to end cycle next weekend. Please encourage them by visiting their website www.charitygiving.co.uk/timothyalexander
Thanks folks
Charlene
x

Please have a look

I will update the blog more indepth later but just wanted to ask you guys to have a look at this link and to please give what you can.
These three men are going to cycle a total of 387 miles from one end of Ireland to the other in 4 days for Charlenes Project. Please show your support for these guys. Thank You
www.charitygiving.co.uk/timothyalexander

A Wee Update

Just a quick update to say that finally starting to feel better. The last two weeks I haven't been feeling great and my bloods shot up to over 100 but now my new IV antibiotics have kicked in and my bloods are down to 50 (still high for a normal person but as we all know by now I am far from normal and so they are good for me :)) Last weekend was my best in ages with me managing a trip to Nandos(i'm beginning to see a trend throughout this blog!!!) and then home for my first BBQ of the year on Sunday. It was MUNCH. So they are now happy to let me home for a few nights a week. SO excited!!! I am getting home tomorrow night until Thurs and so get to sleep in my own wee bed again. :) The only thing I have to be careful with is that I don't make myself sick again because when I am at home I find it SO difficult to sit there and do nothing and then I get tired and as a result make myself sick so I am just going to have to take it easy, something which I find very frustrating.
Also for all you facebook addicts out there, Charlenes Project has now got its own cause page so please search for it and join and get it around as many people as you can. www.causes.com/4883303?m=266f5cf . Anyway that is all I have to update you all on now
God Bless
Char

A Quick Update

Just a wee quick update to let you know where things are at. I am still in hospital 8weeks and counting :) but things are pretty stable and I am still on that list which is good. They aren't too keen to send me home cause me being me likes to try and do too much when she goes home and shall we say maybe pushes the limits a little bit, and they are worried that if I go home for good I will just detoriate and end up back at square one which I so don't want to happen. Whereas being in hospital I am forced to sit here and do nothing. I don't like to admit this but I do kind of see their point. So we reached a compromise and I'm going to stay here as long as I get home one or two nights a week and then maybe we can look at being home long term. So pretty much I get out for good behaviour lol.
This week has been a good week with me weighing in at 42kg(can we say OBESE!!!!) and then on Tuesday night I was allowed to get out for the evening to go and see my boys (Westlife) I even took Dad along but secretly I think He really enjoyed it (though he would never admit that :)) It was a brilliant night and I must say Shane just gets better looking every time lol. Also my inflammatory markers in my blood went from being like 200 to 42 in the space of a few days which is really good. So that pleased us all. Lets hope it stays there!!
Got home overnight last night and slept in my own wee bed for the first time in weeks. AMAZING.So Im looking forward to my next wee outing home.To be honest its what keeps me going. This morning we had our first Newcastle scare. Mum, Dad,David Poppa and me went out for coffee and didn't mums phone go off with a witheld number, sure enough it was Newcastle so there was Dad and me looking at each other trying to piece together what they were saying to mun on the phone. Turns out they needed a blood sample from me and that was it. To be honest thats ok cause at least it means they are working at my stuff over there and keeping me in mind, and anyway it wouldn't have suited me anyway I was out enjoying coffee thank you very much :)
On Hidden Treasure front things are going really well and we are now up to about £94,000 which is awesome but keep it coming people cause I have an orphange to build afterwards. Also Dad was talking to the folks at Fields of Life yesterday and they are going to start building within the fortnight how awesome is that. God is just amazing and I am so excited to see the things that are achieved through this wee school and all the little kids that will hopefully get the chance to get to school thanks to all you guys. Thank you all so much. You are all legends. God Bless you all <3
Char